Rare Disease Day

Pre-Order Your Candle for Rare Disease Day – Spread Awareness for Congenital Hyperinsulinism (HI) and Congenital Hyperinsulinism International (CHI)!

In honor of Rare Disease Day on February 28, 2025, we’re launching a special candle fundraiser to spread awareness for Congenital Hyperinsulinism (HI) – a rare and often misunderstood condition that affects many lives— including Pete’s niece, Elizabeth.

HI is the most frequent cause of severe, persistent hypoglycemia (low blood sugar) in newborns and children. With only about 1 in 28,000 births affected, this condition is considered rare, and the impact it has on families is profound. When diagnosed early and treated properly, children with HI can avoid severe complications, including brain damage. Yet, without early recognition and effective treatment, the risks can be devastating.

Each candle purchased is more than just a warm light for your home – it’s a beacon of hope and awareness. Proceeds will go to Congenital Hyperinsulinism International to fund critical research, education, and support for families battling HI.

By pre-ordering today, you’re not only taking part in a meaningful cause, you’re helping to shine a light on the importance of early diagnosis and the need for ongoing research in rare diseases like HI.

Each candle is crafted with care, designed to symbolize the strength and hope of those living with HI. Light one in your home and share its glow with others – together, we can make a difference! Pre-order your candle today and join us in lighting the way toward a future where rare diseases like HI are no longer overlooked or misunderstood.

Thank you for your support – your purchase is a powerful step in spreading awareness and creating change.

To learn more about HI and how you can help, please visit https://congenitalhi.org/